Sue Baker

Rare Care Centre, Perth Children’s Hospital, Australia

Title: Developing a global nursing network for rare diseases to enhance patient care and support

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Biography

Sue Baker is Co-Director of the Rare Care Centre at Perth Children’s Hospital in Western Australia (WA) and co-founder of the Global Nursing Network for Rare Disease. With over 40 years’ experience in children’s healthcare across the UK and WA, she is recognised as a highly credible senior nursing leader with a proven track record in innovative service design and successful delivery of large-scale programs in complex environments, particularly for vulnerable cohorts of children and families.

Sue has a wealth of experience across multiple sectors including inter-agency initiatives, education, high-level project management, service planning, academic translational health system research, and senior management of children’s services. She has held various Director and Executive roles within CAHS including serving as Director of Clinical Commissioning in the Perth Children’s Hospital Project.

Sue challenges the status quo and is passionate about driving system change that delivers tangible and effective outcomes for children and families. Sue is a highly motivated in steering teams towards a shared vision, with the proven ability to operationalise that vision to achieve high impact deliverables.

She successfully spearheaded the Ambulatory Care Services for children across WA and is passionate about helping those that need it the most. This commitment has been recognised through multiple WA Awards, including Health Leadership Award for Ambulatory Care services, Nursing Award in Research and Innovation Category, and the prestigious title of WA Nurse and Midwife of the Year.

Sue’s ability, breadth of experience and diverse skills in co-leading the establishment of the existing Rare Care Centre for children in WA, delivering a multitude of services in novel ways, and rapidly achieving effective outcomes have all contributed to position the existing Rare Care Centre as a global lead. Simultaneously Sue has quickly gained credibility as a prominent nursing leader in rare disease, and sits on several taskforces, networks and committees.

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